The two most active Sjogren’s Syndrome forums I have located are:

I recommend visiting them to interact with others. Just keep in mind that many of the frequent posters have some of the most serious symptoms, so don’t get too depressed by some posts that you may read.

There are also a variety of Facebook groups available. Unfortunately, most of them are closed and some are very distrustful of new members, to the point that they can be difficult to join. However, they often have very helpful members exploring new treatments. A couple of my groups include:

I also encourage you to find local support groups in your local community. is a great place to search.

Finally, feel free to contact me if you have any other forums, communities, or just want to chat.

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