Comments for What You Sjo http://www.whatyousjo.com/ Sharing knowledge & hope for Sjogren's Syndrome sufferers Sun, 09 Aug 2020 06:42:00 +0000 hourly 1 https://wordpress.org/?v=5.6 Comment on Stem cell advancements signal a possible cure for Sjogren’s Syndrome by Mordehay Laniado http://www.whatyousjo.com/2016/08/stem-cell-advancements-signal-a-possible-cure-for-sjogrens-syndrome/#comment-180 Sun, 09 Aug 2020 06:42:00 +0000 http://www.whatyousjo.com/?p=265#comment-180 In reply to Roberta Wolschon.

hi any new information about stem cells and Sjogren syndrome thank

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Comment on My Treatment Regimen by Anne Foin http://www.whatyousjo.com/treatments/my-treatment-regimen/#comment-179 Sun, 07 Jun 2020 04:36:00 +0000 http://www.whatyousjo.com/?page_id=204#comment-179 In reply to whatyousjo.

I have been taking maqui berry (helps with dry eye) and my eyes are pretty good.

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Comment on A Sjogren’s patient finds success with diet and collagens by Anne Foin http://www.whatyousjo.com/2016/05/a-sjogrens-patient-finds-success-with-diet-and-collagens/#comment-178 Thu, 07 May 2020 22:15:00 +0000 http://www.whatyousjo.com/?p=218#comment-178 In reply to Cindi L..

I am trying Amy Myer’s collagen now, with glutamine, zinc carnotine, DGL licorice and vitamin C. Just getting going on that…….My understanding is you have to stick with it for up to a year to really find out if it will work. I am trying to implement the parts of Hannah Yosef’s protocol that I can do and feel right to me.

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Comment on A Sjogren’s patient finds success with diet and collagens by whatyousjo http://www.whatyousjo.com/2016/05/a-sjogrens-patient-finds-success-with-diet-and-collagens/#comment-177 Wed, 22 Apr 2020 02:44:00 +0000 http://www.whatyousjo.com/?p=218#comment-177 In reply to Mtish.

Hi Mtish. The archived copy of Chris’ blog post linked at the end of my post above is all I have.

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Comment on A Sjogren’s patient finds success with diet and collagens by Mtish http://www.whatyousjo.com/2016/05/a-sjogrens-patient-finds-success-with-diet-and-collagens/#comment-176 Mon, 20 Apr 2020 23:20:00 +0000 http://www.whatyousjo.com/?p=218#comment-176 Hi, it seems Chris’ blog is no longer online, I get a 500 server error so was wondering if anyone saved the information or had more details on the “collagen cocktail” ingredients and other tips he may have had. Any help appreciated.

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Comment on Stem cell advancements signal a possible cure for Sjogren’s Syndrome by Roberta Wolschon http://www.whatyousjo.com/2016/08/stem-cell-advancements-signal-a-possible-cure-for-sjogrens-syndrome/#comment-175 Sat, 05 Oct 2019 21:30:00 +0000 http://www.whatyousjo.com/?p=265#comment-175 In reply to whatyousjo.

Any updates on Rooster since 2016 Stem Cell MSC treatment? I have been researching SS since my Diagnosis 7/2019, which I am still trying to understand. Is there a secondary Auto Immune Disorder I have? There are many SS symptoms (joint pain, confusion or inattentiveness, on and off blurry vision with near/far distance) symptoms appear to be effecting other bodily systems not always spoken about with SS. My primary complaints are not dry eye or dry mouth (I have assumed this dry eye to be the multiple allergies I have with outdoor and indoor allergens). Primary complaints with being easily fatigued, IBS or IC flare ups with maybe one with Pancreas gland ? (foul with loose/watery BM occurring every few weeks to days apart). Can one really BEAT autoimmune and put it in remission with diet as reported in books?

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Comment on My Treatment Regimen by whatyousjo http://www.whatyousjo.com/treatments/my-treatment-regimen/#comment-174 Thu, 12 Sep 2019 18:00:00 +0000 http://www.whatyousjo.com/?page_id=204#comment-174 In reply to Lucas Silva.

There are pain killers and anti-depressants that can sometimes help with SFN, but the best treatment is to address the underlying disease. Assuming it is related to your SS, the treatments above (or other drugs like immunosuppressants, if necessary) are your best option.

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Comment on My Treatment Regimen by Lucas Silva http://www.whatyousjo.com/treatments/my-treatment-regimen/#comment-173 Wed, 04 Sep 2019 16:13:00 +0000 http://www.whatyousjo.com/?page_id=204#comment-173 luke I am presenting symptoms of Small Fiber Neuropathy (SFN) have you heard of any treatment, vitamins, etc. that works?

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Comment on Sjogren’s Syndrome clinical trial updates, including Orencia (abatacept) by Lucas Silva http://www.whatyousjo.com/2019/06/sjogrens-syndrome-clinical-trial-updates-including-orencia-abatacept/#comment-172 Thu, 11 Jul 2019 16:42:00 +0000 http://www.whatyousjo.com/?p=462#comment-172 Something new in your treatment regimen

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Comment on Sjogren’s Syndrome clinical trial updates, including Orencia (abatacept) by Lucas Silva http://www.whatyousjo.com/2019/06/sjogrens-syndrome-clinical-trial-updates-including-orencia-abatacept/#comment-171 Thu, 11 Jul 2019 16:41:00 +0000 http://www.whatyousjo.com/?p=462#comment-171 Thanks Luk, I was missing your posts.

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