Blog Archives

An annual Sjogren’s treatment update for 2020

2020 has been a long year for everyone, and Sjogren’s patients aren’t excluded. I’ve encountered some technical difficulties with this site which delayed this post, but I believe the significant issues have been fixed. The most unfortunate news is that

Posted in Clinical Trials, Treatment Tagged with: ,

Scleral lenses for Sjogren’s Syndrome

Most contact lens wearers who develop Sjogren’s Syndrome find that they need to bid farewell to their contacts due to eye dryness. Many of these patients don’t realize that there is a contact option that not only allows them to

Posted in Treatment Tagged with: , , ,

Sjogren’s Syndrome clinical trial updates, including Orencia (abatacept)

There was a much longer gap than I expected since my last post, so I’d like to start by looking at some updates in the clinical trial space for Sjogren’s Syndrome. The first trial I would like to look at

Posted in Clinical Trials, Research, Treatment Tagged with: , ,

Thanksgiving update with BCG vaccine study results

It’s been 6 months since my last post, largely due to a busy schedule and technical issues. I changed computers, and had a little trouble transferring my site management setup. I’ve also had to stop taking Plaquenil/hydroxychloroquine this summer, and

Posted in Clinical Trials, Research, Treatment Tagged with: ,

Study finds that baking soda reduces inflammation, could treat autoimmune diseases

I saw this study appear up in some mainstream science news sources over a week ago. The essentials of the study are that a group of healthy volunteers were able to stimulate the production of regulatory immune cells by consuming baking

Posted in Research, Treatment Tagged with:

Sjogren’s Syndrome Foundation cuts diagnosis time in half and the positive impact on existing patients

SS patients know well the difficulty of obtaining a diagnosis. The symptoms of SS are often ascribed to other maladies, side effects, or natural aging. The diversity of symptoms means that many doctors, dentists, optometrists, and specialists see only part

Posted in Diagnosis, Publicity, Research, Treatment Tagged with:

ImmuPharma’s Lupuzor fails to meet the primary endpoint in its phase 3 trial

I woke to extremely disappointing news this morning. In my Hope for 2016 post, I mentioned peptide based drugs as my #2 hope, with Lupuzor being the key candidate. Over the past several years, I have watched the Lupuzor trials

Posted in Clinical Trials, Treatment Tagged with: ,

Plaquenil/hydroxychloroquine may have more extraglandular benefits for Sjogren’s Syndrome patients

Hydroxychloroquine (generic Plaquenil) is often prescribed off-label by doctors for Sjogren’s Syndrome patients despite the fact that it has never been approved by governing agencies like the FDA. I myself have taken hydroxychloroquine for several years. Studies have generally found that hydroxychloroquine

Posted in Research, Treatment, Uncategorized Tagged with: ,

Study Finds that Gut Bacteria Drive Autoimmune Diseases

I’ve seen this study appear in several places, including more mainstream news outlets. A Yale study, published in the journal Science, found a strong connection between gut bacteria and the emergence of autoimmune diseases. Gut health has been linked to a number

Posted in Research, Treatment

Experimental gene therapy functionally cures SS in mice

It’s been a long time since my last post, due to a combination of holiday travel and issues with the software that I use to manage this site. Luckily things appear to be back on track, and I’m ready to

Posted in Research, Treatment
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