Blog Archives

New year’s thoughts on COVID-19 and Sjogren’s

Happy 2022 readers, and I hope you are doing well. It has been a while since my last update, but I am still here and relatively stable. Like many, I was hoping that vaccinations would allow a return to normalcy

Posted in Research Tagged with:

Sjogren’s Syndrome clinical trial updates, including Orencia (abatacept)

There was a much longer gap than I expected since my last post, so I’d like to start by looking at some updates in the clinical trial space for Sjogren’s Syndrome. The first trial I would like to look at

Posted in Clinical Trials, Research, Treatment Tagged with: , ,

Thanksgiving update with BCG vaccine study results

It’s been 6 months since my last post, largely due to a busy schedule and technical issues. I changed computers, and had a little trouble transferring my site management setup. I’ve also had to stop taking Plaquenil/hydroxychloroquine this summer, and

Posted in Clinical Trials, Research, Treatment Tagged with: ,

Study finds that baking soda reduces inflammation, could treat autoimmune diseases

I saw this study appear up in some mainstream science news sources over a week ago. The essentials of the study are that a group of healthy volunteers were able to stimulate the production of regulatory immune cells by consuming baking

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Sjogren’s Syndrome Foundation cuts diagnosis time in half and the positive impact on existing patients

SS patients know well the difficulty of obtaining a diagnosis. The symptoms of SS are often ascribed to other maladies, side effects, or natural aging. The diversity of symptoms means that many doctors, dentists, optometrists, and specialists see only part

Posted in Diagnosis, Publicity, Research, Treatment Tagged with:

Plaquenil/hydroxychloroquine may have more extraglandular benefits for Sjogren’s Syndrome patients

Hydroxychloroquine (generic Plaquenil) is often prescribed off-label by doctors for Sjogren’s Syndrome patients despite the fact that it has never been approved by governing agencies like the FDA. I myself have taken hydroxychloroquine for several years. Studies have generally found that hydroxychloroquine

Posted in Research, Treatment, Uncategorized Tagged with: ,

Study Finds that Gut Bacteria Drive Autoimmune Diseases

I’ve seen this study appear in several places, including more mainstream news outlets. A Yale study, published in the journal Science, found a strong connection between gut bacteria and the emergence of autoimmune diseases. Gut health has been linked to a number

Posted in Research, Treatment

Experimental gene therapy functionally cures SS in mice

It’s been a long time since my last post, due to a combination of holiday travel and issues with the software that I use to manage this site. Luckily things appear to be back on track, and I’m ready to

Posted in Research, Treatment

Another dry eye treatment, Elate by Cambium, cleared for phase 1/2 trials

It has been nearly 15 years since Restasis was approved to treat dry eyes. SS patients had to make due with Restasis until last year when Xiidra was approved. The floodgates seemed to have opened, as a variety of dry eye

Posted in Clinical Trials, Research, Treatment Tagged with: , ,

Small study finds vagus nerve stimulation reduces fatigue in Sjogren’s Syndrome

Fatigue may well be the most challenging symptom of Sjogren’s Syndrome, or any chronic illness, to treat. It’s pervasive, largely invisible, and has a significant negative impact on the lives of SS patients. So when I see a study, even

Posted in Research, Treatment Tagged with: ,
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