Blog Archives

Comment Guidelines and Treatment Updates

Hi everyone. I’ve had a busy and tiring summer, so I’m afraid that I haven’t been posting as much as usual, and responding to emails more slowly. Hopefully that will change going forward. I plan to add some new posts in

Posted in Personal, Treatment, Website Tagged with: , ,

Update on CBD Oil and Medical Marijuana laws

Happy new year everyone! I have a backlog of stories from the holidays, so I’m starting out the new year with an update to my last post on CBD oil. To begin, I would note a couple of legal changes

Posted in Personal, Treatment Tagged with: , ,

Personal Sjogren’s Syndrome Treatment Update – September 2016

It’s been months since I posted about my own treatment, so I’ve decided to post an update. I’ve also updated my treatment regimen. I will outline the updates below: Helminthic Therapy I last posted a detailed update in January. In terms of

Posted in Personal, Treatment Tagged with: , , ,

Taking a break

I’ve spent a lot of time this year posting in various online venues, particularly the Sjogren’s World forums. A lot of people have been asking questions that I myself asked years ago, and I enjoy helping where I can. It

Posted in Personal Tagged with:

So many new treatment protocols (Coimbra and Modified Hannah Yoseph)

I have a serious backlog of posts that I need to deal with right now. The Sjogren’s World forums have been buzzing with a couple new treatment protocols: Chris’s modified Hannah Yoseph Protocol that I mentioned in a previous post, and

Posted in Personal, Treatment Tagged with: ,

Tips for finding a good rheumatologist (or any other doctor)

This question has come up on two different online communities that I’m a member of, so I thought I would share the information from my posts here. While I am focussing on rheumatologists, since they are the most important doctor

Posted in Patient Care, Personal Tagged with: ,

The good and bad of the online Sjogren’s Syndrome community

I try to avoid writing about my own frustrations, but over the past week, I have had a couple frustrating experiences with members of the online Sjogren’s Syndrome community: A member of an online forum, completely out of the blue, sent me

Posted in Personal, Testimonial

I’ve finally assembled my personal treatment regimen for Sjogren’s Syndrome

It’s been a while since I posted, and it has occurred to me that I have yet to create a comprehensive space for my full treatment regimen. Instead, there are bits and pieces scattered throughout the site. To rectify that

Posted in Personal, Treatment

Ubiquinol and low-dose Naltrexone for Sjogren’s Syndrome

I’m always willing to explore new treatments as long as they have some relevant evidence to back them up. Recently, I’ve decided to try two new treatments: Ubiquinol and low-dose Naltreone. I learned about Ubiquinol through a forum post. It

Posted in Personal, Treatment Tagged with: ,

Helminthic Therapy for Sjogren’s Syndrome – 10.5 month update

I was thinking to wait for the full year, but I’ve had some requests for an update on my helminthic therapy results. A reminder of previous events: February 2015 – decided to order NA (necator americanus, aka hookworms) March 2015 – first

Posted in Personal, Treatment Tagged with:
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