Yearly Archives: 2016

Medical Marijuana/Cannabidiol (CBD) for Sjogren’s Syndrome

It’s been a little while since my last post, but I hope my readers in the United States had an enjoyable Thanksgiving holiday. It can be challenging to find the positives when fighting a serious chronic disease, but I hope

Posted in Research, Treatment Tagged with: , ,

Sjogren’s Syndrome Clinical Trial Updates – Abatacept and BMS-986142

It’s been a busy month, but I wanted to squeeze at least one post in before November. There are a couple of interesting clinical trial developments I thought I would elaborate upon. Abatacept/Orencia I posted a few months ago about a

Posted in Clinical Trials, Treatment Tagged with: , site updates – search, mailing list, and more!

This weekend, I’ve made a few long-overdue updates to the site. First, you should notice a new search option at the top of the page. As time has passed, I’ve found it harder to locate older posts on this site,

Posted in Website

Hackers release medical records of Sjogren’s Syndrome patient Venus Williams

I have mixed feelings writing this post, as this information is private and should have never been released to the public. However, it has already been covered extensively by international news outlets. As a result, I’ve decided to offer my

Posted in Publicity, Treatment Tagged with: ,

Sjogren’s Syndrome diagnosis, seronegativity, and the CFS/ME/fibromyalgia dumping ground

I’ve seen a lot of discussion in online forums asking if someone with negative tests actually has SS. One one hand, no one wants to be misdiagnosed. If, for example, a patient’s symptoms are actually caused by hypothyroidism, they will

Posted in Diagnosis, Treatment Tagged with: , ,

Personal Sjogren’s Syndrome Treatment Update – September 2016

It’s been months since I posted about my own treatment, so I’ve decided to post an update. I’ve also updated my treatment regimen. I will outline the updates below: Helminthic Therapy I last posted a detailed update in January. In terms of

Posted in Personal, Treatment Tagged with: , , ,

Xiidra (Lifitegrast), a new prescription eye drop for dry eye, approved by the FDA

For the first time in over 10 years (since Restasis), a treatment for dry eye has been approved by the FDA. The approval happened in July: According to the company, in all four studies, a larger reduction in eye dryness

Posted in Patient Care, Treatment Tagged with: ,

Stem cell advancements signal a possible cure for Sjogren’s Syndrome

Once again, current news compels me to refer to my January post, Hope for 2016 – 5 upcoming treatments for Sjogren’s Syndrome. In that post, my #1 treatment was stem cells. I mentioned that there are two types of stem cell

Posted in Research, Treatment Tagged with:

Abatacept open-label study for Sjogren’s Syndrome concludes with promising results.

Back in January, I wrote a post titled Hope for 2016 – 5 upcoming treatments for Sjogren’s Syndrome, I mentioned an active clinical trial using Orencia/Abatacept to treat Sjogren’s Syndrome. That trial is still ongoing, but a smaller Japanese trial for

Posted in Uncategorized

Virus-Like Elements in the Human Genome Linked to the Development of Sjogren’s Syndrome

I’ve had this one on my blog backlog for a month now, but I wanted to get it out there. While my #1 interest is in SS treatments, research that seeks to understand the underlying mechanisms of autoimmune diseases are

Posted in Research, Uncategorized Tagged with:
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